Coming soon — Gray Colored Glasses podcast, Season One, will tell the long and winding story of our son’s dual diagnosis, first with a rare genetic variation at 15 months of age, and ultimately with PANS.
If you haven’t heard of PANS—Pediatric Acute-onset Neuropsychiatric Syndrome—you’re not alone. We’re glad you’ve found your way to this site, where it’s our vision to make PANS a household name. It’s estimated that 1 in 200 children/youth suffer with PANS, which means there are kids in nearly every school and place of worship who are living with it. And yet, PANS often goes undetected, because it is a relatively new diagnosis and not well known, even among doctors. Sadly, delayed treatment can result in years of unnecessary suffering and potentially permanent consequences.
This podcast aims to change that landscape, to introduce listeners to PANS through the powerful medium of storytelling. Why? Because sometimes we gain better understanding through people’s stories than we ever will in a list of symptoms. And because I am a writer, and bearing witness to my own family’s struggle with PANS is where I can do the most good.
This podcast is not intended to give medical advice but rather to paint a portrait of life with PANS that is memorable and shareable. Whether or not you are directly affected by PANS, we hope this podcast will capture your heart and your attention and compel you to share what you learn. If you find yourself in our story, or find yourself thinking of someone you know, visit our resources [link] page for more information and help.
Next up: If your family is impacted by PANS/PANDAS/AE or another little-known diagnosis or disability, and you would like to share your story on a future season of Gray Colored Glasses podcast, contact us for consideration.
Gray Colored Glasses 